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PRODID:-//National Organization for Rare Disorders - ECPv6.3.5//NONSGML v1.0//EN
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X-WR-CALNAME:National Organization for Rare Disorders
X-ORIGINAL-URL:https://rarediseases.org
X-WR-CALDESC:Events for National Organization for Rare Disorders
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BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
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TZNAME:EDT
DTSTART:20240310T070000
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DTSTART:20241103T060000
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DTSTART:20251102T060000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240408T160000
DTEND;TZID=America/New_York:20240408T200000
DTSTAMP:20240408T045755
CREATED:20240322T210535Z
LAST-MODIFIED:20240322T210535Z
UID:10000520-1712592000-1712606400@rarediseases.org
SUMMARY:Chipotle Fundraiser for NORD
DESCRIPTION:Attention burrito lovers in Mansfield\, MA! On Monday April 8th from 4pm-8pm\, stop by Chipotle in Mansfield (287 School St.) to raise money for NORD! Show this flyer in-person at check out\, or use code 94GMLRA and 25% of events sales will be donated to NORD.
URL:https://rarediseases.org/event/chipotle-fundraiser-for-nord/
CATEGORIES:NORD Events,RareAction Network Events,Running for Rare
ATTACH;FMTTYPE=image/jpeg:https://rarediseases.org/wp-content/uploads/2024/03/490555-flyer.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240413
DTEND;VALUE=DATE:20240414
DTSTAMP:20240408T045755
CREATED:20240320T134042Z
LAST-MODIFIED:20240330T145957Z
UID:10000505-1712966400-1713052799@rarediseases.org
SUMMARY:Boston Athletic Association 5k
DESCRIPTION:Come cheer on NORD’s Running for Rare Team at the Boston Athletic Association 5k! As a member of the cheer section\, you’ll have the opportunity to uplift and support our runners along the race route! This is more than just cheering; it’s about being part of a supportive community and raising awareness for rare diseases. Bring your loudest cheers\, colorful signs\, and unwavering spirit to make a difference in the lives of our runners. \nThe race starts at 8am\, and the start line is on Charles Street between the Boston Public Garden and Boston Common.
URL:https://rarediseases.org/event/baa5k-boston-ma/
CATEGORIES:NORD Events,RareAction Network Events,Running for Rare
ATTACH;FMTTYPE=image/jpeg:https://rarediseases.org/wp-content/uploads/2024/03/BostonMarathon-30.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240415T100000
DTEND;TZID=America/New_York:20240415T140000
DTSTAMP:20240408T045755
CREATED:20240320T134244Z
LAST-MODIFIED:20240330T180915Z
UID:10000506-1713175200-1713189600@rarediseases.org
SUMMARY:Boston Marathon
DESCRIPTION:Come cheer on NORD’s Running for Rare Team at the Boston Marathon!  The NORD Running for Rare team is proud to have 13 runners in the Boston Marathon. Join us as we cheer on the team in Wellesley\, MA in front of the Unitarian Universalist Church (309 Washington St.) from 10am-2pm (or until the last runner passes us). Sign up here.
URL:https://rarediseases.org/event/boston-marathon/
CATEGORIES:Running for Rare
ATTACH;FMTTYPE=image/jpeg:https://rarediseases.org/wp-content/uploads/2024/03/BostonMarathon-61.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240420T090000
DTEND;TZID=America/New_York:20240420T103000
DTSTAMP:20240408T045755
CREATED:20240403T183732Z
LAST-MODIFIED:20240403T183732Z
UID:10000530-1713603600-1713609000@rarediseases.org
SUMMARY:NORD 5k - Race for Rare!
DESCRIPTION:Support NORD’s Students for Rare Chapter at the University of Virginia by running or walking in-person or virtually! We welcome supporters from all areas! \nRace start time: 9am ET \nLocation: UVA South Lawn \nPrice: $18 \nClick here to register! \nIf you aren’t able to participate but would still like to support\, please click here to donate!
URL:https://rarediseases.org/event/nord-5k-race-for-rare/
CATEGORIES:RareAction Network Events,Students for Rare
ATTACH;FMTTYPE=image/png:https://rarediseases.org/wp-content/uploads/2024/04/race141079-logo.bKg64Q.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240503T193000
DTEND;TZID=America/New_York:20240503T210000
DTSTAMP:20240408T045755
CREATED:20240404T142150Z
LAST-MODIFIED:20240404T142150Z
UID:10000531-1714764600-1714770000@rarediseases.org
SUMMARY:Decade Dash Trivia Night for Danny's Dose
DESCRIPTION:Help support Danny’s Dose Alliance in our legislative\, regulatory\, and educational efforts to assure prompt and proper care for over 28 million Americans living with 1 of 32 primary conditions identified to date that require specialized emergency treatment. Join us for a trivia night that’ll be full of fun and laughter\, great food\, raffle items\, and prizes. \nAdvanced Ticket Price: $25 per person or $175 per table of 8 \nAt the Door Ticket Price: $30 per person
URL:https://rarediseases.org/event/decade-dash-trivia-night-for-dannys-dose/
CATEGORIES:NORD Member Event
ATTACH;FMTTYPE=image/jpeg:https://rarediseases.org/wp-content/uploads/2024/04/Danys-Dose.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240518
DTEND;VALUE=DATE:20240520
DTSTAMP:20240408T045755
CREATED:20240320T134428Z
LAST-MODIFIED:20240320T134428Z
UID:10000507-1715990400-1716163199@rarediseases.org
SUMMARY:Denver Colfax Marathon Runs
DESCRIPTION:Learn more at https://runningforrare.org/events/
URL:https://rarediseases.org/event/denver-colfax-marathon-runs/
CATEGORIES:Running for Rare
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240607
DTEND;VALUE=DATE:20240609
DTSTAMP:20240408T045755
CREATED:20231205T153551Z
LAST-MODIFIED:20231205T153552Z
UID:10000382-1717718400-1717891199@rarediseases.org
SUMMARY:NORD® Living Rare\, Living Stronger® Patient and Family Forum
DESCRIPTION:The 2024 NORD® Living Rare\, Living Stronger® Patient and Family Forum will be held in Los Angeles\, CA at the Hilton Universal City on June 8\, with a welcome reception the evening of June 7. After six years\, we are excited to bring this program to the west coast! This event will bring together the incredible rare disease community for a day filled with learning\, networking\, and relationship building. The Living Rare Forum is an opportunity for people living with rare diseases and their families to come together\, often for the first time\, to gain practical knowledge on how to manage their health and live their best rare lives.
URL:https://rarediseases.org/event/nord-living-rare-living-stronger-patient-and-family-forum/
LOCATION:The Hilton Los Angeles/Universal City Hotel\, 555 Universal Hollywood Dr\, Universal City\, CA\, 91608\, United States
CATEGORIES:NORD Events
ATTACH;FMTTYPE=image/jpeg:https://rarediseases.org/wp-content/uploads/2023/12/NRD-2308-LRLS-RIA-Save-the-Date-SM-Graphic_1-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240608
DTEND;VALUE=DATE:20240609
DTSTAMP:20240408T045755
CREATED:20231205T153820Z
LAST-MODIFIED:20231205T153820Z
UID:10000383-1717804800-1717891199@rarediseases.org
SUMMARY:Rare Impact Awards®
DESCRIPTION:
URL:https://rarediseases.org/event/rare-impact-awards/
LOCATION:The Hilton Los Angeles/Universal City Hotel\, 555 Universal Hollywood Dr\, Universal City\, CA\, 91608\, United States
CATEGORIES:NORD Events
ATTACH;FMTTYPE=image/jpeg:https://rarediseases.org/wp-content/uploads/2023/12/NRD-2308-LRLS-RIA-Save-the-Date-SM-Graphic_1-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241026
DTEND;VALUE=DATE:20241027
DTSTAMP:20240408T045755
CREATED:20240320T134650Z
LAST-MODIFIED:20240320T134650Z
UID:10000508-1729900800-1729987199@rarediseases.org
SUMMARY:Marine Corps Kids Run
DESCRIPTION:Learn more at https://runningforrare.org/events/
URL:https://rarediseases.org/event/marine-corps-kids-run/
CATEGORIES:Running for Rare
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241027
DTEND;VALUE=DATE:20241028
DTSTAMP:20240408T045755
CREATED:20240320T134802Z
LAST-MODIFIED:20240320T135457Z
UID:10000509-1729987200-1730073599@rarediseases.org
SUMMARY:Marine Corps Marathon Runs
DESCRIPTION:Learn more at https://runningforrare.org/events/
URL:https://rarediseases.org/event/marine-corps-marathon-runs/
CATEGORIES:Running for Rare
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241104
DTEND;VALUE=DATE:20241105
DTSTAMP:20240408T045755
CREATED:20240320T135011Z
LAST-MODIFIED:20240320T135011Z
UID:10000510-1730678400-1730764799@rarediseases.org
SUMMARY:New York City Marathon 2024
DESCRIPTION:Learn more at https://runningforrare.org/events/
URL:https://rarediseases.org/event/new-york-city-marathon-2024/
CATEGORIES:Running for Rare
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241116
DTEND;VALUE=DATE:20241117
DTSTAMP:20240408T045755
CREATED:20240320T135132Z
LAST-MODIFIED:20240320T135132Z
UID:10000511-1731715200-1731801599@rarediseases.org
SUMMARY:Charlotte Marathon
DESCRIPTION:Learn more at https://runningforrare.org/events/
URL:https://rarediseases.org/event/charlotte-marathon/
LOCATION:CT\, United States
CATEGORIES:Running for Rare
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250421
DTEND;VALUE=DATE:20250422
DTSTAMP:20240408T045755
CREATED:20240320T135252Z
LAST-MODIFIED:20240320T135252Z
UID:10000512-1745193600-1745279999@rarediseases.org
SUMMARY:Boston Marathon (2025)
DESCRIPTION:Learn more at https://runningforrare.org/events/
URL:https://rarediseases.org/event/boston-marathon-2025/
LOCATION:CT\, United States
CATEGORIES:Running for Rare
END:VEVENT
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